I had never
heard him speak a recognisable word for several years but he made noises all the
time; grunts, squeals and groans, growls and hysterical laughter. In his own
way he understood (and found the world funnier) than we gave him credit for. He
could make himself understood at all times and knew exactly what he wanted and I
understood every grunt and growl. He was very good at a meltdown too if he couldn’t get his own way; make himself
understood or didn’t want to comply. Throwing himself on the floor and becoming
a floppy mess he could lie there forever or until a new puzzle was offered to him. I could observe him for hours; he was
one of the most fascinating and beautiful specimens of the human race I had
ever encountered.
At two
years he was stubborn and feisty; determined and persistent. He played alone, didn’t
acknowledge his peers and could concentrate for great lengths of time on a
topic or resource of high interest. He loved numbers, trains, puzzles, science
and patterns. He disliked craft and creative projects, messy and outside play. Trains
with numbers were like chocolate to him. By the time he was four he could do
sixty to one hundred piece puzzles with no picture, upside down and back to
front. I will never forget the day he took a puzzle box with three different
puzzles inside (all mixed up) and without the pictures and in no particular order
that made any sense to me (or anyone else) he sorted the pieces for the most difficult
within a few minutes by throwing over his shoulder the pieces he had no use
for! He then proceeded to complete the puzzle (with no picture) and with the
pieces the wrong way up. He seemed to be able to complete puzzles by shape and
pattern, it was astounding and a miracle to watch.
Always in his head and his world he amused himself very well and happily with his high
interest toys and cruising the room searching out numbers on a daily basis. He would
line up toys with numbers in order, all around the room and was very unhappy
if you moved a number out of sequence. He could count to in sequence to infinity
before the age of three. He recognised every number in the world around him (in
and out of order) and could add and subtract very large number patterns. James was
an enigma at age four.
At four
years he began to speak in extremely adult language and using mathematical and
scientific words, although he used short sharp sentences. When asking for his
milk at snack time he would ask by the literage that appeared on the four pint semi skimmed
bottle, for example, 2.272 litres. Everything in his world represented a
number; he spoke of no one by name. Everything and everyone was a number in his
world. The staff were given numbers as names; I was number six? The only
acceptable books for our Jay were books with numbers included in the pictures
and storyline, which he would read (and repeat) over and over; Jay was fascinated and obsessed with rhyming
and language. He taught himself to read at a very early age and could read and
recognise complex words without understanding the meaning of them. There is condition
called Hyperlexia which is where a child has an intense fascination for letters
or numbers and the ability to read far beyond their age but has a below average
understanding of the spoken word and interacting and socialising. Jay loved numbers
and scientific words especially but at times I don't believe he understood what he was discussing.
Jay was the
third child of a family of four children, very much loved and very much
understood by his highly intelligent parents. The eldest daughter also had a
diagnosis of high functioning Autistic Spectrum Disorder, passed the 11+ and
was on the gifted programme at the local grammar school and top of the class. Jay also received a
diagnosis of high functioning ASD and a statement of educational needs to
follow him to reception and assist him through his primary education and beyond if necessary.
Jay would
be eight or nine now; I often wonder how and where this beautiful able boy is
today?
Jay was twice exceptional – Gifted with ASD - some children have a
learning disability alongside their giftedness or high ability, which adds
another dimension, difficulty and frustration.
It is important to see the whole child and the two individual learning needs;
it is important to not let the disability get in the way of the high ability of
any child and vice versa. Many learning
difficulties do not interfere with intellect.
This beautiful boy, Jay, reminds me of my beautiful boy Billy. I get it.
ReplyDeleteThank you for commenting and that's special that Jay reminds you of Billy, two very special boys. Thank you for getting it, he was amazing to work with, educate and watch grow. I was blessed.
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